Update....

by The Squirrell 27. September 2013 22:15

Due to one thing and another I have neglected my blog a bit !

 

The duties of doting Dad and getting well again are time consuming !

 

I have been very low, as my weight continues to increase every

time I so much as smell a cake or chip shop! QEH have been

very supportive as ever, and are trying to reduce my steriods

to help with the weight, I am also REALLY being careful what

I eat and when.

 

I had a bad batch of norovirus which hit me hard for a few

weeks and I just couldn't seem to drag myself back up to

"Typical Matt" antics, just lay in bed, trying not to mess the

bed, or puke into my tissue box!!  

 

Jane and Hannah also got a good dose of it, but had the 

 advantage of an immune system to fight it! BUT

all in all you did not want to be our sewage pipe !!

 

I am now up and around and more importantly making up for

lost time with Samuel and our play times! He is coming on a

treat, and for all those who have emailed making lovely

enquiries about us all, here are some recent pics of Samuel

etc.

 

Thanks for looking in followers!...Watch this space!                                                                                                                                            

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QEH today...

by The Squirrell 15. August 2013 05:36

Due to my escalating weight, QEH is trying to ween

my body off the steroids.

 

Sadly as I been on them to long, they fear I am now "hooked"

and my glands will no longer produce my own hormones etc as

they have become "lazy"?

 

I have been suffering with extreme fatigue (legs, arms, neck pain etc)

and tiredness. Also dizzy spells, sickness and general "felling like crap"!

I am told this is all part of the withdrawl symptoms, and so they are reluctant 

to take me off completely.

 

Sadly there is also a HIGH chance of my rejecting due to the lowering of

the steriods. QEH have told me that the weight NEEDS to come off as its

now life threatening. (I have gained 20KG post transplant in 4 years!)

 

I am off to QEH today for a heart biopsy, and a barrage of tests so am

very anxious, but also still craving cakes!! (Dam these steroids!!)

 

Wish me luck!!  Smile

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Samuels House....

by The Squirrell 30. July 2013 20:04

I know having a "Play House" is a bit girly, but I

thought Samuel would like one to play in and take

his cars into out of the sun? (Boy its been hot here!!)

 

I got this one, and I admit painting flowers on the front

and his name on the door was a touch girly, he seemed to

appreciate it?!

 

He loves it, and sits in there with his cars, in the shade

of the day. Although he's growing so fast I am not

sure how long he will able to use it?!

 

Thank you followers for all your messages about 

Sam (And all of us!) We are plodding along okay

and all enjoying the good weather (and my

reasonable health ! )

 

(Although I am struggling with my weight gain post

transplant, QEH are trying to help me lower my steriods

without bringing in rejection, so watch this space!!)

 

 

Excuse the slightly "Big Bad Wolf" picture last of all...

I am sure seeing that face will scare Samuel half to death?! 

E

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Hot Hot....

by The Squirrell 21. July 2013 19:53

As the UK sees record temp's of almost

90 degrees, I was worried about Samuel in

the heat...

 

 

(As he's also sporting a cut nose from a recent fall!) 

 

Then I remembered I had an OLD dome tent !

 

Grampy and I erected it in my garden in the

shade of a tree and Samuel was cool and had

fun coming in and out with toys, and we even had

an impromptu picnic out there!!

 

I hope the heat dies back abit soon, as its

really taking its toll on me, and

I have a stinking cold bug to which I cant

shift ! Maybe decamping into the tent is not a

bad idea?!

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Video of Grampy...

by The Squirrell 26. May 2013 23:00

First time to try to upload a video!!

 

Was a lovely day today, so Grampy and Samuel decided to

go exploring (Thanks to George for permission to wander!)

 

Samuel LOVES the Jeep Grampy built him and they go out

together for a ride often (Weather and terrain permitting!)

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New edition....

by The Squirrell 25. May 2013 22:57

There are reasons why Dad and I are not allowed out

on our own !...

 

Especially when there's a Classic Auction running !

 

;-)


Drives well, but got to get a seat belt fitted for Samuels car seat!


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Louis...RIP

by The Squirrell 25. April 2013 19:10

Although I not am a "Dog person" once a lifetime comes an animal

that is such a gentle, loving, funny, courageous, creature you

find yourself wondering what you'd do with out them?....

 

Today we all had to answer that question.....

 

Thank you Louis for making Samuel appreciate what a

wonderful thing  a canine companion can be. He is missing

you and saying "Woof" everytime he passes where

you sleep.

 

Rest easy Puppy, we love you, and you leave a big hole in the family....

 

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Samuel in the Sun...

by The Squirrell 23. April 2013 23:27

Well Spring may well be on its way?...

 

Samuel and I prepared for what was a wonderful day

playing and chuckling in and out of the sun...

(Both wearing sun screen obviously!)

 

He was wonderful company all day....

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Novel idea, in pictures...

by The Squirrell 1. April 2013 19:56

In light of recent events I have decided that THIS 

is a really novel and good idea.

 

For April, I will be adhering to this to reflect on in a

months time..

 

I encourage you to do this as well...

 

(with modern cameras/phones it will take 3 seconds a day?!)

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Sad Easter....

by The Squirrell 30. March 2013 19:47

To Dorein -

 

Thank you for many years of love, laughter, warmth and

the best cuddles!

 

Our lives are colder and sadder already. But most of all,

thank you for teaching Samuel all that is wonderful about Cats...

 

 His big grey friend is already being missed as Samuel roams

the house searching at everyone of your sleeping places...

 

Sleep well my beloved friend....

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About Matt.

My name's Matt. I was born with a congenital heart defect which hampered me in my youth, and sadly became a terminal conditon recently, and beyond the (amazing) care of the BRI-Bristol Heart team.

In 2008, my condition deteriorated, to a point I was happy to see Xmas 2008. I had prepared to die.

Then in January 2009, a late night phone call from QEH-Hospital Birmingham changed my world, when they offered me a heart transplant, if I could get there pronto!!

6 months on, after a rocky start, I am still alive, thanks to them!

Read on to see how my new life is taking shape, and my adventures to date!....

 

Matt.

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