Dyrham.......

by The Squirrell 25. June 2010 07:37

I took myself off to Dyrham House with my friend and

walking companion Lewis!


Dyrham holds alot of History for my family, as my great Grandfather

was thier furniture maker and my great Granny was in service there to

and thats how they met, and I ended up here!!


The house is fabulous and the gardens and grounds are immaculately

kept and maintained. We had a good walk down (& up!) the winding and meandering

drive to the house, and mooch around the grounds! (All good excerise to keep

steriod fat at bay!!)


I bought a kids kitem and tried to fly it, but as I opened the packet, the breeze died!

The kite had a big ASS on it, which, ironically is how I felt with a kite on a still day!!


Great afternoon out, and a cheeky ice cream........sssshhhhhhh!!  ;-)

 

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More support!.....

by The Squirrell 24. June 2010 22:27

Further to my last post about "Free Prescriptions..."

(See below.)

 

http://www.ipetitions.com/petition/freemedicationfortransplantpatients/


As you can imagine, I have been going at it in

"Typical Matt" fashion, and looks like

I have support from high and unexpected places!!


I have recived 2 very nice and supportive letters from

Steve Webb MP, and from Proffessor Gilmore at the

Royal college of Physicians!


BOTH support my campaign and have both lobbied

the Prime Minister on my behalf!!


Wish me luck!!

 

 

 

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FREE prescriptions for Transplant recipients.......

by The Squirrell 24. June 2010 22:26

I have currently got a "Bee in my Bonnet" !


After a £90.00 charge for my medications/pills I began to

look into NHS rulings on FREE prescriptions etc.


Turns out, unless you meet a series of criteria you do not qualify!

(However if you are over 65, unemployed, asylum seeker, etc you CAN

get FREE NHS care for everything!)


UK residents who meet certain criteria CAN get a "Medical Exemption"

card for free prescriptions etc with an FP92A form. (In brief) If you have Cancer,

are a Diabetic, or have certain other illnesses you CAN get an exemption

card for "Life Preserving" lifelong medication! I felt this was unfair as we Transplant

patients also need "Life Preserving" medication to combat rejection etc, and

it is also a life long requirement, so WE ALSO meet this description!


So in "Typical Matt Style" I decided this was unfair, and have resolved to

solve this discrminatory policy! Mr Cameron has a letter en route, so do

numerous other depts!


You to can help me achieve this goal ! I made an online petition you can sign!

http://www.ipetitions.com/petition/freemedicationfortransplantpatients/


Please help me/US..... Thank you !

 

 

 

 

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Ston Easton....

by The Squirrell 13. June 2010 08:37

Top afternoon!....


Afternoon tea at Ston Easton House Hotel, with fellow members

& guests of the Somersert Automobile club. (Big thanks to Chris Bigwood

for organising this again!)


Lots of old friends (with thier even older cars!) and, more to the point,

lots of delicious cakes! (If any of the Transplant team are reading this,

I only had a couple, and walked them off after! - HONEST!!)

 

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Top Nosh up!.....

by The Squirrell 6. June 2010 12:49

Took my little poppett for a top meal today!


We went to Lucknam Park for a lovely Sunday lunch

its it's bistro, and then a wander around the grounds.


It's a beautiful place, and the food was fantastic. We tootled

up in "The Ark Royal" and really enjoyed the time together!

(Going to have to have a MEGA walk to loose THAT meal, tomorow!)

 

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HAPPY Birthday!

by The Squirrell 4. June 2010 09:05

Well, I made it to my 2nd (post transplant!) Birthday today....


Had a lovely relaxing day in the sun!


However the heat from my (coughs!) numerous candles

may have added to global warming and the melting of the

ice caps?

 

If you find a polar bear in your garden tomorow I am VERY sorry!!

 

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Top Walk!....

by The Squirrell 3. June 2010 12:12

Since the cutting of one of my drugs, I have piled on

the pounds! I have been trying to walk and exercise it off!


Went to Westonbirt Arboretum today for a stroll. It was serene,

relaxing, majestic, and as ever awe inspiring to see Mother Nature

at work!


DEFINATELY recomend a visit!!

 

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About Matt.

My name's Matt. I was born with a congenital heart defect which hampered me in my youth, and sadly became a terminal conditon recently, and beyond the (amazing) care of the BRI-Bristol Heart team.

In 2008, my condition deteriorated, to a point I was happy to see Xmas 2008. I had prepared to die.

Then in January 2009, a late night phone call from QEH-Hospital Birmingham changed my world, when they offered me a heart transplant, if I could get there pronto!!

6 months on, after a rocky start, I am still alive, thanks to them!

Read on to see how my new life is taking shape, and my adventures to date!....

 

Matt.

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