QEH today...

by The Squirrell 15. August 2013 05:36

Due to my escalating weight, QEH is trying to ween

my body off the steroids.


Sadly as I been on them to long, they fear I am now "hooked"

and my glands will no longer produce my own hormones etc as

they have become "lazy"?


I have been suffering with extreme fatigue (legs, arms, neck pain etc)

and tiredness. Also dizzy spells, sickness and general "felling like crap"!

I am told this is all part of the withdrawl symptoms, and so they are reluctant 

to take me off completely.


Sadly there is also a HIGH chance of my rejecting due to the lowering of

the steriods. QEH have told me that the weight NEEDS to come off as its

now life threatening. (I have gained 20KG post transplant in 4 years!)


I am off to QEH today for a heart biopsy, and a barrage of tests so am

very anxious, but also still craving cakes!! (Dam these steroids!!)


Wish me luck!!  Smile


About Matt.

My name's Matt. I was born with a congenital heart defect which hampered me in my youth, and sadly became a terminal conditon recently, and beyond the (amazing) care of the BRI-Bristol Heart team.

In 2008, my condition deteriorated, to a point I was happy to see Xmas 2008. I had prepared to die.

Then in January 2009, a late night phone call from QEH-Hospital Birmingham changed my world, when they offered me a heart transplant, if I could get there pronto!!

6 months on, after a rocky start, I am still alive, thanks to them!

Read on to see how my new life is taking shape, and my adventures to date!....



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