by The Squirrell 23. February 2010 04:30

The answer to yesterdays question is......

...........................  ICE !  ! ........................

I found this fascinating! The patterns and delicate fibres of ice,

like leaves and branches on a tree? (I took the pictures of the

ice that was on the outside of our bedroom window.)

Sorry, no prizes for correct answers! (I am to mean!!)  ;-)


Can you guess what it is yet?!......

by The Squirrell 22. February 2010 11:31

I found this FASCINATING!....

Can you guess what it is?.....



Results are in!.....

by The Squirrell 18. February 2010 09:01

10/10 to QEH!....

They pulled it around! It seems the battering with drugs,

and the time frame/quantities were spot on! Although

rejection is ongoing, is back to a managable level, and

it appears from my Echo, Xray, etc that the Heart function is "ok"


Got to rejig drugs, and up quantity abit, and take extra for a

month or so, I am back for another Biopsy/operation in 3 weeks

to see how it's going?

NEVER been this relieved!!!   Woo Hoo!!

BIG thanks to Sharon, Majid, and Team!! (&

of course Jane, and my family! x)

Go Man Go!........



by The Squirrell 17. February 2010 19:59

Up to QEH today for operation/Biopsy.....

Am REALLY apprehesive!....




by The Squirrell 16. February 2010 07:25

I feel wiped out!....

Since I found out I have rejection, I have been feeling

REALLY low. I have worked SO hard to watch my diet,

exercise, make the most of EVERY day, take my various

pills on time, check my weight, and temp etc meticulously,

that I (niavely!) thought I could hold off rejection! (Dumb eh?!)

I feel totally dejected, and depressed and my normally positive

attitude is slipping away.......When QEH rang, they told me to take

100mg of a drug on Thursday, Friday, and Saturday, then drop back

to my usual dose of 10mg. I think taking 10x times the usual

dose has really hit home now! I ache, all my joints hurt, I feel

exhausted, and sleep until almost lunchtime, (BUT seem to have

become nocturnal? I lie awake until 5 or 6am, before I get tired?)

The new (Anti viral?) drug is also some horrid stuff, it makes me feel

really sick all day, and gives me a banging headache that I can't shift!

(And leaves an acidic taste in the mouth, like you've just been sick?)

I really feel like I have had a good kicking, everything hurts, and I just

can't shift this lethergy, and drowzyness all day. I go out in the fresh

air and push myself to go for a walk, but it hurts so much I almost cry,

and I feel my eyelids getting heavy even in this temperature!

Can't wait to get back to QEH, I need to know whats going on....

The waiting is awful....


Here's hoping.....

by The Squirrell 12. February 2010 12:50

Saturdays "revised" /increased drugs to try to stop rejection?

(And they taste HORRID!!) The increase in dose has left me

with ravenous hunger, DRAMATIC mood swings, tears for no

reason, insomnia, nausea, and low immune system so can't

see my Jane on Valentines?     :-(

Feeling crap to, as biopsy didn't got to well for me, and I

must've slept awkwardly, as it all kicked off today, and had

to get GP/nurse to re-patch me!       :-(

NORMALLY my specialist Majid is immaculate with his work

and usually not a drip in sight, but just not my day on Thursday?!




by The Squirrell 11. February 2010 13:52

QEH just called.....

I am rejecting my heart. I am GUTTED....

I am not sure what happens now, and how and if QEH can help?

One of my med's has gone up 10 fold as of tomorow, so that can't

be a good sign, and got to start another drug ASAP.

They will call me tomorow when my rejection drug blood test

results are in and I guess we go from there?....WATCH THIS SPACE!






QEH........Wish me luck!

by The Squirrell 11. February 2010 05:26

Off to QEH tomorow for my rejection test and Biopsy!

Am REALLY nervous as ever! Keep your fingers crossed

for me and wish me luck!!


Hope I am not in for a nasty shock? (Like this guy?!)  ;-)


About Matt.

My name's Matt. I was born with a congenital heart defect which hampered me in my youth, and sadly became a terminal conditon recently, and beyond the (amazing) care of the BRI-Bristol Heart team.

In 2008, my condition deteriorated, to a point I was happy to see Xmas 2008. I had prepared to die.

Then in January 2009, a late night phone call from QEH-Hospital Birmingham changed my world, when they offered me a heart transplant, if I could get there pronto!!

6 months on, after a rocky start, I am still alive, thanks to them!

Read on to see how my new life is taking shape, and my adventures to date!....



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