Zzzzzzzzzzz.........

by The Squirrell 16. February 2010 07:25

I feel wiped out!....


Since I found out I have rejection, I have been feeling

REALLY low. I have worked SO hard to watch my diet,

exercise, make the most of EVERY day, take my various

pills on time, check my weight, and temp etc meticulously,

that I (niavely!) thought I could hold off rejection! (Dumb eh?!)


I feel totally dejected, and depressed and my normally positive

attitude is slipping away.......When QEH rang, they told me to take

100mg of a drug on Thursday, Friday, and Saturday, then drop back

to my usual dose of 10mg. I think taking 10x times the usual

dose has really hit home now! I ache, all my joints hurt, I feel

exhausted, and sleep until almost lunchtime, (BUT seem to have

become nocturnal? I lie awake until 5 or 6am, before I get tired?)

The new (Anti viral?) drug is also some horrid stuff, it makes me feel

really sick all day, and gives me a banging headache that I can't shift!

(And leaves an acidic taste in the mouth, like you've just been sick?)


I really feel like I have had a good kicking, everything hurts, and I just

can't shift this lethergy, and drowzyness all day. I go out in the fresh

air and push myself to go for a walk, but it hurts so much I almost cry,

and I feel my eyelids getting heavy even in this temperature!


Can't wait to get back to QEH, I need to know whats going on....


The waiting is awful....

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16/02/2010 21:43:03 #

matt

Frown

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About Matt.

My name's Matt. I was born with a congenital heart defect which hampered me in my youth, and sadly became a terminal conditon recently, and beyond the (amazing) care of the BRI-Bristol Heart team.

In 2008, my condition deteriorated, to a point I was happy to see Xmas 2008. I had prepared to die.

Then in January 2009, a late night phone call from QEH-Hospital Birmingham changed my world, when they offered me a heart transplant, if I could get there pronto!!

6 months on, after a rocky start, I am still alive, thanks to them!

Read on to see how my new life is taking shape, and my adventures to date!....

 

Matt.

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