Bad news~?...

by The Squirrell 27. February 2013 13:45

Went back to QEH on 26th Feb for my rescheduled operations/investigations.

 

Feeling VERY low at the moment. Apart from all the bruises and sore parts

etc, the news about my shortness of breath was NOT what I wanted to hear.

 

Apparently all is not good with the heart. The in and out pressures are 

not equal, showing the heart is under compression and struggling etc.

 

 

 

Also there is "furring up" of my main arteries. This has come as a huge blow

to me as I had hoped the heart was doing okay, and this was a fluid related

"glitch".... It sounds more serious to me...

 

Not sure where this is going.....

 

 

Very sad.....

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Comments (3) -

28/02/2013 13:50:59 #

matthew

Frown

matthew United Kingdom | Reply

05/03/2013 10:01:43 #

FML

I'm very sorry to hear you've been having complications, and hope QEH can get rid of the fluid that's compressing your heart. Re the arteries, it's common now to switch to/add sirolimus as the main immunosuppressant  in such cases, as it reduces the progression or even reverses it.  I've found your blog very helpful  when my husband  was facing transplant - i admire how you make the most of life, and your little boy is absolutely beautiful!

FML United Kingdom | Reply

05/03/2013 21:08:53 #

matthew

Thanks for the kind words! Samuel is the most wonderful little boy, I am SO lucky to have him in my life. As for sirolimus, I will ask QEH about this and let you know! (Top tip- Thanks!)

matthew United Kingdom | Reply

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About Matt.

My name's Matt. I was born with a congenital heart defect which hampered me in my youth, and sadly became a terminal conditon recently, and beyond the (amazing) care of the BRI-Bristol Heart team.

In 2008, my condition deteriorated, to a point I was happy to see Xmas 2008. I had prepared to die.

Then in January 2009, a late night phone call from QEH-Hospital Birmingham changed my world, when they offered me a heart transplant, if I could get there pronto!!

6 months on, after a rocky start, I am still alive, thanks to them!

Read on to see how my new life is taking shape, and my adventures to date!....

 

Matt.

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