Zzzzzzzzzzz.........

by The Squirrell 16. February 2010 07:25

I feel wiped out!....


Since I found out I have rejection, I have been feeling

REALLY low. I have worked SO hard to watch my diet,

exercise, make the most of EVERY day, take my various

pills on time, check my weight, and temp etc meticulously,

that I (niavely!) thought I could hold off rejection! (Dumb eh?!)


I feel totally dejected, and depressed and my normally positive

attitude is slipping away.......When QEH rang, they told me to take

100mg of a drug on Thursday, Friday, and Saturday, then drop back

to my usual dose of 10mg. I think taking 10x times the usual

dose has really hit home now! I ache, all my joints hurt, I feel

exhausted, and sleep until almost lunchtime, (BUT seem to have

become nocturnal? I lie awake until 5 or 6am, before I get tired?)

The new (Anti viral?) drug is also some horrid stuff, it makes me feel

really sick all day, and gives me a banging headache that I can't shift!

(And leaves an acidic taste in the mouth, like you've just been sick?)


I really feel like I have had a good kicking, everything hurts, and I just

can't shift this lethergy, and drowzyness all day. I go out in the fresh

air and push myself to go for a walk, but it hurts so much I almost cry,

and I feel my eyelids getting heavy even in this temperature!


Can't wait to get back to QEH, I need to know whats going on....


The waiting is awful....

Tags:

Here's hoping.....

by The Squirrell 12. February 2010 12:50

Saturdays "revised" /increased drugs to try to stop rejection?

(And they taste HORRID!!) The increase in dose has left me

with ravenous hunger, DRAMATIC mood swings, tears for no

reason, insomnia, nausea, and low immune system so can't

see my Jane on Valentines?     :-(


Feeling crap to, as biopsy didn't got to well for me, and I

must've slept awkwardly, as it all kicked off today, and had

to get GP/nurse to re-patch me!       :-(


NORMALLY my specialist Majid is immaculate with his work

and usually not a drip in sight, but just not my day on Thursday?!

 

Tags:

:-(

by The Squirrell 11. February 2010 13:52

QEH just called.....


I am rejecting my heart. I am GUTTED....


I am not sure what happens now, and how and if QEH can help?

One of my med's has gone up 10 fold as of tomorow, so that can't

be a good sign, and got to start another drug ASAP.


They will call me tomorow when my rejection drug blood test

results are in and I guess we go from there?....WATCH THIS SPACE!

:-(

 

 

 

Tags:

QEH........Wish me luck!

by The Squirrell 11. February 2010 05:26

Off to QEH tomorow for my rejection test and Biopsy!


Am REALLY nervous as ever! Keep your fingers crossed

for me and wish me luck!!

 

Hope I am not in for a nasty shock? (Like this guy?!)  ;-)

Tags:

www.kartpartz.co.uk..... :-)

by The Squirrell 30. January 2010 07:13

Time for a new hobby, (to fund this blog/hosting etc!....)


For all you wannabe Lewis Hamiltons & Jenson Buttons,

you need to start in Karting!....(GREAT fun, in my opinion!)


Wish me luck!   www.kartpartz.co.uk

 

Tags:

Just made me laugh out loud....

by The Squirrell 26. January 2010 08:03

Sorry.....


This made me laugh out loud, so thought it only fair to share!


 

Tags:

Payday loans!........

by The Squirrell 24. January 2010 16:00

Plesae Please Please....All you guys who log on to so say

read my posts from "pay day loan" firms, "teeth whiteneing"

companies, and "online meds" DON'T leave comments.....


I am aware it's just a rouse to get links/improve your "google"

status etc, so we delete them! Save your energy!.... and leave the

site for those who are genuinely interested in my progress and the

intricate life of a transplant recipient, as it's intended!


I don't make a penny from this site, so no point trying to piggy back

it for your OWN financial gain!


Thank you.

Tags:

Autosport Show....

by The Squirrell 14. January 2010 11:27

Had a HUGE walk around the Autosport show at the NEC

today with Dad. (Pooped out now! But still amazed at how

far my new ticker will power me!)   ;-)

 

WWW.autosport-international.com/public/


We had a good drive up in the snow and fog, met a couple of

old friends, and had a good mooch about! There was LOADS

of trade stands selling stuff, and not many cars to look at, so

was a bit dissapointing. BUT the cars that were there were very

interesting and some ultra RARE!....


Here are some of my favourites!....

 

 

 

 

Tags:

Ninja Cat?.....

by The Squirrell 9. January 2010 07:19

I think he may be stalking me?!.....

 

Tags:

Nature...

by The Squirrell 8. January 2010 02:12

Isn't Mother nature amazing?....

 

 

Tags:

About Matt.

My name's Matt. I was born with a congenital heart defect which hampered me in my youth, and sadly became a terminal conditon recently, and beyond the (amazing) care of the BRI-Bristol Heart team.

In 2008, my condition deteriorated, to a point I was happy to see Xmas 2008. I had prepared to die.

Then in January 2009, a late night phone call from QEH-Hospital Birmingham changed my world, when they offered me a heart transplant, if I could get there pronto!!

6 months on, after a rocky start, I am still alive, thanks to them!

Read on to see how my new life is taking shape, and my adventures to date!....

 

Matt.

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